It's now 9:20 pm and this is the FIRST chance I've had at sitting down to the computer.
There was a guy sitting at the hospital computer today. He was blogging. hmm. I tried reading the sign...umm, emails and research buddy...but he wouldn't budge. Either way it took too long and I went back to Nate.
The scope was this morning. No go on extubating just yet. :( His tongue is now in his mouth and not as swollen but apparently his throat is still too swollen to pull the tube.
They are going to try again tomorrow and I just keep praying that they'll get it out.
He was awake several times today. He would cry....tears would roll down his face....his face would grimace...and his little chin would quiver...but there was no sound. His eyes would look up at me like, mom....please help me....get me out of here. I cried again. I would comfort him and stroke his forehead and wipe his tears and tell him he was going to be ok and that I was sorry and then I would look at the sweet little quivering chin under all of that tape and tubes and I couldn't hold the tears back.
He did give the RN a dirty look each time he would mess with him :) ha ha Same ol Nate man. He was pretty pissed off. So good to see.
They keep changing his antibiotic and the plethora of meds they are giving him. I hate it. He has an irregular heartbeat. A heart rate that WAS in the 140's....and now sits in the 60's-70's. His blood pressure is always high at 145/91'ish. They finally got it down to 111/47'ish early this afternoon but it went back up.
The doctors always seem a little alarmed by it all but chalk it up to..he is healthy other than this big neck and head thing. His body will compensate for it eventually.
He's had a fever of 101 every day until today and his C02 is still in the low 50's. I hate it. I just want his little body healthy. I want him to be on the mend. How is it that the GOBS of medication aren't clearing this up.
The kids came up to the hospital today and played in the playroom. They LOVE it in there. I have to say...I do too.
They got to see Nate and had lots of questions about the machines and the tubes and they all wanted to know if he would be ok. So sweet.
We had cheese sandwiches in the lunchroom, played hide and seek in the garden area and of course played in the revolving door.....and then they left.
I got a call from J at around 5pm. "Syd's glands are swollen and she has a fever of 101. What do you want to do?"
LUCKY for us, our peds office was open today. A holiday. I KNOW ! I LOVE them.
They were able to get her in at 6pm. I flew home from the hospital and raced to her doctors to make it on time.
She has strep.
Nathan, Ryan and Syd are all on antibiotics. (sigh)
My parents are home from their holiday vacation weekend and my mom says she'll stay with my kids tomorrow. whew
IF they extubate tomorrow they said they'll still keep him in the PICU to watch him for a day or 2 before moving him to a regular room. That means that I'll be at the hospital for AT LEAST another 3 days. ugh.
I feel like this is one big day terror.
PRAY that they pull the tube tomorrow. PLEASE let the swelling in his throat come down. PLEASE !
Tomorrow is a new day !
